Osteoporosis is a very common bone condition characterized by a decrease in bone density. Patients with this condition have very porous bone structures, leading to fractures, pain, and structural deformity of the spine.
The Osteoporosis Program at UHN offers diagnoses and treatments to those with this progressive metabolic bone disease. However, there cannot be any diagnoses or treatments without knowledge. Research is necessary to identify the condition, the state of development, and the appropriate treatment. UHN leads the research to diagnose the condition as early as possible, track the progress accurately, and optimize the treatment procedures.
The Osteoporosis Program at UHN initially started with paper forms to collect the data. After a while, the division did not have enough space to store the information and turned to Excel spreadsheets. While it was a simple system to store information, it was not very effective for research purposes. It was very difficult to find specific subjects, organize the information, extract data, and generate statistics; all aspects very crucial to research. In addition, as a multi-centre study, the information collected from one centre needed to be accessible from all other sites. The only method was to use the UHN shared drives, which quickly filled with data, as external databases could not be used due to security reasons. The program needed a user-friendly database that was organized, secure, and could run over multiple collection centres.
The program turned to the DADOS team for the solution. The program now uses the user-friendly interface to store their information. The information can then be extracted just as easily as it was stored. DADOS can also generate custom reports from multiple studies allowing very quick analyses of information. DADOS offers an online database that allows access to the information from any site, yet DADOS is admin managed and secure enough to hold medical information. Only authorized personnel may access the information and any changes to the information are tracked and recorded in an audit trail.
The Osteoporosis Program of UHN is very pleased with the role DADOS plays in the research. The researchers do not have to spend unnecessary time organizing and struggling to access information, allowing more time for clinical research.