Additionally, data integrity is ensured through an audit log for all data entered in DADOS – the audit log shows changes made to the data and the username of the person who made the changes.
Initially, they tried a product that didn’t fit their needs and a coworker at the UHN Transplant Program brought DADOS to Dr. Mucsi’s attention. At first, Dr. Mucsi and his team conducted a pilot study where they created a number of questionnaires into the DADOS platform and asked patients with various stages of chronic kidney disease to complete questionnaires on iPads using the platform’s patient user interface. They aimed to assess the feasibility of collecting patient information using DADOS on tablet computers.
“The pilot study was a success, and most of our patients liked the fact that they didn’t require a lot of help with the platform.” – Dr. Mucsi
Recently, Dr. Mucsi engaged the DADOS team about using computer adaptive testing (CAT) to administer certain questionnaires and specifically several Patient-Reported Outcome Measurement Information System (PROMIS®)item banks. Using PROMIS® CATs substantially reduces questionnaire burden (on average, asking from four to six questions for every domain is sufficient, done within ~ 1 minute) while maintaining or increasing measurement precision. The DADOS team was able to integrate the two systems for Dr. Mucsi’s team and they’ve been using it since.
Dr. Mucsi and his team have now been using DADOS for more than two years. They have used DADOS at UHN, Humber River Hospital, Brampton Civic and St Michael’s Hospital (using tablets). They have recruited about 1000 patients across multiple studies.